Fight against solitude

You feel alone to live with a child suffering from a rare disease: this video of Helene and Estelle has been made for you.

Helene and Estelle are friends and mothers of 2 children affected by different rare diseases. However, they feel the same and have experienced the same things, in this video they draw up a report.

Today Helene and Estelle come up to one of the most difficult stage of a rare disease: the isolation.

We hope that this video will make you feel better and less alone!

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