To lend a moral support to the patients and to their families since the first contact. From our first contact with them we are attentive to the patients and we make them feel confident whatever the way: by phone, e-mails or physically.
To forge links between the families and the patients: the oldest patients can advise and support the youngest ones, and the families can exchange on the disease and on the daily constraints.
To give cooking advice by creating and improving hypo proteinic recipes. The head-chef of L’Atable Restaurant: Christophe TEILLET, supports us and likes to cook hypo proteinic food and gives knacks to make a success of the recipes.
To inform people on the Tyrosinemia and its constraints, to raise awareness for our fight against Tyrosinemia among the general public.
To cooperate with institutions playing a key role in the fight against the Tyrosinemia, not only in order to improve medical care and recognition as a visible handicap but also to make circulate information to the laboratories to improve and change the amino acids substitutes and make the research progress.